Ethical concerns of genetic research

Logan JS, Sharma A. Since most people at risk for Huntington disease have not chosen testing to see if they have the genetic marker for the disorder, 67 geneticists may be overestimating the relative's desire for genetic information and infringing upon the relative's right not to know.

The more settings in which they can be informed about genetics, the more able they will be to make these decisions. Code of medical ethics of the American Medical Association: At least two states prohibit denying an individual life insurance or disability insurance, or charging a higher premium, solely because the individual has sickle cell trait.

Supreme Court has held that a woman can abort without her husband's consent even if this will interfere with her husband's reproductive plans. Physicians should inform their patients of that fact and help them to prepare for dealing with their results, including considering disclosure to their biologic family.

DNA cloning, therapeutic cloning, and reproductive cloning 3. Government action with respect to genetic diseases is likely to be regarded much differently, especially with respect to disorders for which an effective treatment does not exist and, consequently, the only medical procedure available is the abortion of an affected fetus.

Two authors recently suggested that the "best consumer advice, given current law, is that one should not send a DNA sample to anyone who does not guarantee to destroy it on completion of the specified test" 7. Annas GJ, Elias S, editors. Suffolk Univ Law Rev ; Dogs cloned from adult somatic cells.

If they had not known about the disorder, they might have lived much happier lives. If the medical or psychosocial benefits of a genetic test will not accrue until adulthood, as in the case of carrier status or adult-onset diseases, genetic testing generally should be deferred.

Incorporating these essential ethical competencies into nursing practice will ensure that nurses provide quality and ethically sound nursing care in the new age of genomic healthcare.

The different applications of genetically engineered animals are presented first to provide context for the discussion. Although actuarial fairness may be intuitively appealing, critics argue that it does not express moral or social fairness.

Beauchamp D E, Steinbock B. Persons who learn, against their will, that they carry a defective gene may view themselves as defective. However, the greater variety of available applications, and the large numbers of animals required for the creation and maintenance of new genetically engineered strains indicate that there is still progress to be made in implementation of the Three Rs principle of Reduction in relation to the creation and use of genetically engineered animals It is time to draw on other social metaphors.

Indeed, this was a concern that was identified in a recent workshop on the creation and use of genetically engineered animals in science The future is likely to involve some public pressures on adults and institutions to avoid passing on some alleles.

The first time most families in the West learn about the practical issues in genetic testing is when a friend or relative needs a test urgently during pregnancy. So if genetic engineering creates animals that help us to develop new human medicine then, ethically speaking, we may actually have a moral obligation to create and use them; or because of an expectation that genetic engineering of animals can help reduce experimental animal numbers, thus implementing the accepted Three Rs framework.

Ethical issues in predictive genetic testing: Reasons for not billing their insurance company included fear of genetic discrimination; fear that future insurability might be jeopardised; fear of discrimination against their children, and fear that existing laws were not adequate to protect them against discrimination.

How can families resolve conflicts when some members want to be tested for a genetic disorder and others do not. Consequently, for the discussion regarding genetically engineered animals to progress effectively, veterinarians need to be aware of the current context in which genetically engineered animals are created and used, and to be aware of the manner in which genetic engineering technology and the animals derived from it may be used in the future.

In each instance, it will be necessary to assess several factors: Questions of allocation cannot be resolved in the abstract.

The President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research recommended that disclosure be made only if 1 reasonable attempts to elicit voluntary disclosure are unsuccessful; 2 there is a high probability of serious e.

Since the debate about ethical issues surrounding genetic testing has gained momentum, the concerns of ethics, public health, and genetics have converged.

Public health practitioners are tasked with identifying possible exposures and recommending testing for communicable diseases that are reportable conditions. Genetic discrimination was identified early on in the Human Genome Project by the Ethical, Legal, and Social Implications program at the National Human Genome Research Institute as an ethical issue that needed to be addressed before the benefits of the Human Genome Project could be fully implemented.

Digital Collections—selected monographs about ethics of genetics research and clinical practice, and current concerns whether genetic intervention creates a new eugenics.

The Human Genome Project provides historical background on the ethical, legal and social aspects of the ongoing mapping of the human genome.

Its bibliography cites. Why Genetic Testing May Lead to Ethical Dilemmas.

Genetics and Ethics

Discussions about ethics are important in many aspects of health care but are especially critical when the health care includes genetic testing.

On March 16, Rep. Louise M.

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Slaughter (D-N.Y.), author of the Genetic Information Nondiscrimination Act of (GINA), passed away at the age of Rep. Slaughter was a strong advocate for genomics research, and her work on GINA helped create protections against genetic discrimination in employment and health insurance.

Genetic engineering of animals: Ethical issues, including welfare concerns especially in the research setting when new genetically engineered animal strains are being developed. intrinsic ethical concerns about the genetic engineering of animals may be cause enough to restrict certain types of genetically engineered animals from.

Ethical concerns of genetic research
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